Hi, I'm Dave but you probably already know that. I recently had a rare form of blood cancer called Waldenstrom's Macroglobulinemia and this blog is here to give everyone who wants to know what they want to know. If you've got any specific questions email me at heylennys@yahoo.com. Have a good day!

Thursday, February 26, 2009

Well, well, well

Hi all!
Great news!

But first, let me apologize; I have been remiss(ion) in my aim to keep updating this blog updated lately. It's been my sincere (re)mission to report everything that's been going on, but there's been a lot of things going on lately and I kept putting it off since there was always something else happening in a day or two that I didn't want to (re)miss(ion) out on...



Have you guessed the great news yet? That's right, I have a new hat!


Oh yeah, I also have official word that the cancer is in remission!

OK, there's a few catches. I will still have to go for 'maintenance Rituxan' every two months for the next two years; the upside of that is that Rituxan, unlike the other chemo chemicals I was getting, should have very few, if any, side effects. Also, we heard it's developed with mouse antibodies, which explains all of those cats hanging around my house. At least that'll solve the chipmunk problem.

I'll also be known to some as a "cancer survivor". I'm not sure I care for that title. It's not like I go around saying that I'm a chicken pox survivor, or bragging that I've survived all the major earthquakes. I'm just Dave.

And Dave is getting back to normal.



Here's a bunch of stuff that's happened in the last couple of weeks:

-6th chemo - last one and done!

-last batch of shots from Kathy, who has done a great jab/job for the last number of months...

-another bone marrow test - ouch!



-more doctor visits, and another trip in to Rush. It's sort of ironic that patience is one of things I've learned most about, and the final confirmation that the cancer is in remission came from a place called 'Rush'...

-the picc line has been taken out - finally!

-there's another doctor visit on Monday, so I'll post the best charts ever that afternoon, promise!


There's been a few more challenges lately as well:

-on one of my rare car trip outtings, I accidentally rolled down the passenger window in Kathy's van. Bad move. It's been broken for awhile; it rolls down, but usually not up. We tried to pull it up, but no dice. After leaving it open all night, Kathy started the van the next morning and tried the button out of habit, and it went right up, saving a probably expensive trip later on to the repair shop... We'll have to get it fixed eventually, but right now would not be the best time.

-Kathy had some tests done which initially showed a possibility that she had some sort of autoimmune disease. This caused a few anxious days while we waited for further test results, since she might have given me something while my immune system was down. To our relief, she's just fine, and the data showed that there was no serious problems...

-Kathy's dad came down with double pneumonia and suffered a mild myocardial infarction (that's a fancy way to say heart attack) on Super Bowl sunday. She had tried to call him during the day a number of times since we had some groceries to take over, but when he hadn't called back by that evening, she decided to stop by anyway and found him laying on the floor, but still conscious. He went to the hospital for about a week, and is now at a rehabilitation center to regain his strength.

So to all of you that have been praying for me, I'd like to say 'thanks' to you, and would request that you give a big 'Thanks!" as well, and add Kathy's dad (Bill Dohm) to your list of people who could use a little help.

Speaking of which, my brother Tim could use a little help finding a job. He was laid off a couple of weeks ago and is actively searching, and said I could mention it here. So if anyone needs a someone for managing accounts receivable and/or managing a department of that type of work that looks somewhat like me but with more hair, let me know. Or you can contact him directly at firecatjoker@yahoo.com.

In spite of all these latest small and large tribulations, I realize that I'm blessed to be here to deal with them. And although they've been frustrating at times, it's nice to talk to Kathy about something other than me, me, me all the time.

A big thanks to everyone who voted for The Lennys in the Best of the Burbs contest nominations in January! We made it into the finals in every category that we were nominated for! Of course, if you kept voting you know that, and hopefully you did. If not, get out there and vote- the finals voting is open until March 15th, so there's still another couple of weeks. You can- and should- vote once a day. If you haven't voted yet, go to nitelife.com and get started!

Here's those categories again:

Vote for The Lennys under:
-Best Classic Rock Band
-Best Cover Band
-Best Musician - Bass (Dave Perrin)
-Best Musician - Drums (John Perrin)
-Best Musician - Guitar (Cory Devlin)

Vote for John's band The Takeouts under:
-Best New Band
-Best Under-21 Band
-Best Local Band Original Album
-Best Local Band Original Song

And vote for Cory's other band After the Fight:
-Best Alternative Band

We thank you for your support! And if anyone is interested, the awards ceremony/banquet is Sunday, March 22nd, and open to everyone! A few of us went to it once and it was pretty fun, so let me know if you're interested and we could all meet up there and see if we won anything!

That's plenty for now, I think! If I think of anything reeeeealllly important, I'll update this weekend, otherwise I'll check in with the latest and greatest on Monday afternoon--

Dave






Monday, February 9, 2009

Reasons To Be Cheerful, Part 3






Hello again! It's been a busy couple of weeks- the best of times and the worst of times if you need a quote. Actually, it hasn't exactly been the worst of times, but they've been worrisome all the same.


Since the graphs are first today, let me talk about me. I am still doing well, as the graphs show if you look at them right. I had the last chemotherapy treatment- yaaaaaayyyyyyy- two weeks ago. Something that I've learned that I was wrong about through all of this: I had the impression that the chemos and their aftereffects would get easier as I went through more of them. Nope! They were all bleah. Not horrible- I still think that other people have had it worse from the stories I've heard, but definitely not my idea of fun. But I'm 6-and-0 now, and better for it!

This post was started and put off too long... I've got better news, so I'm starting over with a new one. But since the new charts are still pretty good, we'll post this one too...






Wednesday, January 21, 2009

Down With Disease


Hi Everyone!
A big thanks to everyone who dropped Kathy a birthday greeting over the weekend! She was very surprised, although I was immediately suspected as having a hand in the proceedings (probably by around 8 am). She received almost 60 emails/ecards and had a lot of fun hearing from you all. It was a big part of a restful and happy birthday weekend all around, so again, many thanks!

Hey, Monday's blood test results are in, and they're.... down!
I was definitely hoping for an upturn, specifically in hemoglobin, but it was down to 7.8 this week. Kathy's been especially watchful since the fevers a couple of weeks ago, almost to the point of over-analyzing things, but she said it seemed like I've been less energetic over the last couple of weeks. Over the weekend I did notice that I was getting a little dizzy after running up the stairs, or after the short time that I was 'allowed' to go out and clear the driveway a bit, so I wasn't entirely surprised or disappointed. However, Dr. Stan was neither surprised nor overly concerned, and commented that the chemo normally is at work for 10-14 days after infusion, and Monday would have been the 14th day. It also depends on the 'booster' shots you get every week, so that could have been a factor in the higher levels of earlier weeks.

He also informed us that the CHOP-R chemo regimen that I'm getting is fairly aggressive and will naturally wear a person down over time, which is why they rarely give anyone more than 6 rounds of it; if a cancer is particularily aggressive they might give 8. Fortunately the bone marrow test in December showed significant progress and this coming Monday will be my last treatment! Then after a couple weeks recovery I'll have one more bone marrow test to (hopefully) confirm the suppression/elimination of the WM, and then it's back to 'normal'!
I don't know how often I'll need to check in for blood tests, but the new 'normal' will include monthly B12 shots (supposedly forever) and going in for a 3-hour infusion of Rituxan every couple of months (for two years). I'm good with that, since normal will also include being able to leave the house, growing hair back (Chicago area winters are not the best time to be bald, I've found), getting back to work, and of course returning with with the Lennys for more shows!
Meanwhile, it's more of the same this week; I had to get 3 shots on Monday, and we got 5 more to take home this week. But my sense of taste seems to be completely back to normal this week, which always seems to make my appetite better, even better than when I'm taking the Prednisone which is supposed to increase it.

Anyway, here's some updated charts for you numbers geeks:




By the way, one of the things I've amused myself with over the last week or so was fixing our dryer when it conked out, so if anyone's having dryer problems, feel free to just drop it off and I'll work on it for you...
Hey, are you still voting daily at nitelife.org for the our Best of the Burbs categories? There's only about a week left until the nominations are closed, so please help us out by voting every day! Here's those categories again:
Vote for The Lennys under:

-Best Classic Rock Band
-Best Cover Band
-Best Musician - Bass (Dave Perrin)
-Best Musician - Drums (John Perrin)
-Best Musician - Guitar (Cory Devlin)

Vote for The Takeouts under:
-Best New Band
-Best Under-21 Band
-Best Local Band Original Album
-Best Local Band Original Song

Those last two are new additions to the categories- John's band The Takeouts just finished recording their first ep last weekend, and it sounds really good! They'll be having a 'release party' for it in the next couple of months, but get on the bandwagon early and vote for it now!

And let me know if any of you win one of the daily raffles that you're entered in every day that you vote! We haven't won anything yet, but I'd still like to know what the prizes are!

Thanks!

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